This publish was initially posted on my Fridays With Lorelei Facebook page together with a number of different updates. Tune in there for added updates. There have been a couple of vital updates on her Fb web page between this weblog publish and the earlier one… just like the one when she was extubated!!
Yesterday Lorelei slept the whole day. Round 430 I requested the nurse to verify her labs (wasn’t speculated to be due for 5ish extra hours) to ensure there wasn’t a loopy purpose she was sleeping. When the labs got here again constant along with her earlier, I made a decision to lastly simply power her to wake her up. (Which is one thing I by no means do however this child had slept nearly 24 hours, by means of a number of respiratory therapies and exams. I wanted to see how she would behave. I wanted to see greater than her eyes reacting once I shine a light-weight in them.)
For about 15 minutes Lorelei was weak, however so extremely completely satisfied and a lot extra like her quirky self. I obtained to carry my child for the primary actual time (not counting when she was intubated and fully drugged) since that point I assumed it might be the final time I held her. Speak about feeling ALL the feels.
I feel she loved these 15 minutes as a lot as I did. However then she handed out, exhausting core. Her physique is weak. A lot weaker than her beforehand low toned physique had been. So hopefully extra sleep will assist. Assuming her mitochondria proceed to play alongside, we look like entering into the best course. Thanks Jesus.
I left the hospital for a bit yesterday when my mother drug me to dinner at Jason’s Deli. As I sat at my desk, I listened to folks across the restaurant cough and hack their manner by means of their meals. One man was sitting on the desk subsequent to the salad bar… he would cough each couple of minutes. Each time I cringed. I’ve mentioned it as soon as and I’ll say it once more: in case you are sick, keep dwelling. Positive, I don’t know Salad Bar Man’s scenario… possibly he isn’t contagious, possibly he has a persistent coughing difficulty, possibly he has a uncommon underlying situation that causes extreme allergic reactions and secretions. However should you’re sick or just lately have been sick, JUST.STAY.HOME. Order meals in (or amazon prime no matter it’s that has you aimlessly wandering round Goal) and preserve your germs to your self. Catching the widespread chilly and even this dreaded flu is probably not a giant deal to most, however it’s life or loss of life for others.
I’ve lived within the PICU for the final 17 days. (And I haven’t been dwelling in 25 days due to work and the vacations.) My mother dropped me again off on the hospital final night time and it was the weirdest feeling. I walked previous an overflowing ER of very sick, coughing youngsters. I walked previous a brand new admission, figuring out that that is “the worst day ever” for these dad and mom. I walked previous a number of PICU rooms the place I do know of households who misplaced their kids within the final 17 days alone. Once I rounded the nook, I used to be thrilled to see my child, my husband and one among our favourite nurses in our not-so-cozy room. I used to be again in our secure little hospital room. The room that I nearly misplaced my child in. The room that I used to be generously gifted a couple of extra valuable smiles from Lorelei in yesterday.
We now have been holding off to see if we will get medical transport dwelling… and fairly frankly I don’t suppose it is going to be taking place. I spent most of yesterday making an attempt to determine our choices. However her “15 minutes of completely satisfied” yesterday make me extra assured in taking the 12 hour drive. After we flag each kids’s hospital up the east coast that’s…
So keep tuned y’all. God is sweet and this little woman isn’t achieved writing her story.